There is increasing evidence that some individuals suffer long term symptoms after recovering from COVID-19 infection, which has led to the term “long-haul COVID” (a term coined by patients who suffer these symptoms who have connected to each other on social media).
Twin360 is a research effort by scientists at Virginia Commonwealth University (VCU) who want to get the full picture of the impact of COVID-19 on the health of twin families. Twin360 analyzes long-term symptoms of COVID-19 that have been reported ranging across depression, exercise intolerance, weakness, and neurologic symptoms.
Studying twins who had the virus, as well as those who did not, is a powerful way to expand our knowledge of COVID-19 and ideally improve our ability to support those impacted. The Twin360 project aims to provide a pathway for twins to take part in this innovative and important research, and the research team selected Vibrent’s Research Cloud and Participant Experience Manager products to power the study.
Twins enrolled in the Twin360 study
Of enrolled participants completed eConsent
Completed at least one survey
Twin360 utilizes the Mid Atlantic Twin Registry (MATR), a registry of over 55,000 twins, to survey twins on COVID infection across twins and development of long-term symptoms. This will assist in understanding why some of those infected with the virus experience long-term or recurring symptoms or sometimes develop brand new symptoms months later.
Twins are studied using the following methods:
VCU’s Twin360 Program uses Research Cloud to:
VCU’s Twin360 Program uses Participant Experience Manager to: