Enhancing Data Collection, Engageement, and Research Impact
Problem Statement
The GO2 registry was using two legacy technology platform providers for lung cancer research. The existing technology had several limitations, such as the inability to collect real-world data, lack of patient engagement, inability to scale, and high cost. Also, the previous technology providers operated as vendors and were slow to make the required changes as GO2 grew. These issues decreased the scientific value and funding of the registry.
GO2 selected Vibrent to provide solutions to these challenges.
The GO2 Lung Cancer Registry is a nationwide, open-access research platform collecting longitudinal patient-generated data. The registry serves a broad population of lung cancer patients and caregivers world-wide.
GOs’s Key Objectives for the Future State
Migrate existing surveys and data from previous providers to a modern platform.
Implement baseline, quarterly, and semi-annual surveys tailored to Small Cell and Non-Small Cell Lung Cancer patients.
Streamline all aspects of population research and study operations.
Create an engaging, consumer-friendly UI for web and mobile apps.
Engage with participants through personalized email and SMS outreach to monitor participant data over many years.
Provide dashboards, and analytics tool.
Create “Research-Ready” data sets for research informatics
Vibrent’s Role in Enabling the Future State
Utilizing Modern Data Technology Stack and Tech Enabled Research Services
- A plug and play technical architecture to expand capacity for recruitment and real-world data collection in real-time.
- Used existing tools – Vibrent’s Participant Experience Manager (PXM), Research Cloud (RC), and Research Workbench (RW).
- Automated import of existing data and surveys improved implementation time to a few hours from what would normally take weeks.
- Identified and solved many data quality issues in the existing surveys and data of GO2.
Impact Areas
Vibrent rapidly migrated surveys and data of 4,000 participants from previous tech providers to its modern data technology stack while saving cost, improving patient experience, study operations and produced research-ready data sets.
Clinical Research and
Real-World Data
Cost Savings
Patient Engagement and User Experience
Regulatory Compliance
Research Ready Data
Tech Scalability and Future Enhancements
Clinical Research and Real-World Data
Survey Data collection efficiency improved by 40%
Automated extraction of clinical data from EHR to EDC enables collection of real-world data and evidence.
Participant diversity expanded: The registry saw a 30% increase in enrollment from underrepresented groups.
Participant enrollment time was reduced by 40%.
Cost Savings
Total Cost of Ownership (TCO) in IT maintenance reduction by 35% (est.) due to improved stability.
Lower study management costs through automated participant follow-ups and digital workflows, reduced manual data entry by 60%.
Cost-per-participant is estimated to decrease by 40%, optimizing resource allocation.
Patient Engagement and User Experience
Increased engagement rates by about 30% through automated reminders and a mobile-friendly interface.
The registry transitioned from a text-heavy interface to a mobile-responsive, and intuitive Apps.
Return of personalized information enabled greater participant engagement.
Regulatory Compliance
The system adheres to HIPAA and GDPR data privacy standards.
Cyber Data Security through UK Cyber Essentials, ISO, NHS DTAC, NIST, and FedRAMP ensure compliance with evolving regulations.
Research Ready Data
High-quality and harmonized data sets ready.
Reduced time to data availability from weeks to seconds.
Streamlined data access for researchers. Researchers gained access to data and insights in real time.
Tech Scalability and Future Enhancements
The platform allows rapid launch of sub-studies within existing cohorts.
The Modern Data Technology Stack is a future proof investment and would seamlessly adapt as technologies evolve.
Continuous enhancements would include UX improvements and expanded survey capabilities.
Integration with wearable devices is available to collect real-time health data.
“Vibrent’s platform has transformed how we manage and collect lung cancer research data and has allowed us to expand the scope of our registry while reducing administrative burden. We now have a scalable, efficient system that enhances research impact for lung cancer patients and caregivers world-side.”
